Yesterday I was deeply saddened to learn of the sudden death of Vicki Forman’s son Evan Kamida. Like many others, I got to know Evan through his mother’s essays – first on sites like Philosophical Mother and Literary Mama (which has set up a memorial fund in honor of Evan) and later through Vicki’s blog and column. Her essay, “Coming to Samsara,” about Evan’s premature birth is the opening selection in Love You to Pieces and still moves me after many readings.
Although the lives of individuals with special needs often go unsung, and these people tend to hover on the margins, Vicki made sure that didn’t happen with Evan. When pubishers shied away from her writings about mothering a multiply disabled boy, Vicki persisted in getting herself – and her son – heard. In doing so, she has shown us the beauty and value of Evan’s life.
I am grateful to have Vicki as a friend, and I am grateful for the gains she has made on behalf of mothers of disabled children and the children themselves. My thoughts are prayers are with Vicki and her family.